Chef's mom was diagnosis with MS about 3 or 4 years ago. She was diagnosed following a very rough year. She had fallen and broken her ankle and had to have surgery. Later that year she was involved in a car accident and hurt her neck. Research shows that shocks to the body such as accidents like hers can activate M.S. that is laying dormant. She began having numbness in her legs, feet, arms. I believe that she had other symptoms as well but am not sure what they were. After many visits to doctors and specialist they came to the conclusion that she likely had M.S. She thus began treatment. She continued with her treatment for some time but felt no relief from symptoms. She tried several types of M.S. medication and even convinced her doctor to get her set up on an experimental medication. All of this to no avail. She sought second opinions and sought to find alternative forms of treatment. She saw spinal doctors who one minute would say that she didn't have M.S. but needed back surgery and then when she would visit for the surgery consult they would refuse to see her or tell her that they couldn't do anything for her. She saw chiropractors who made promises that went unfulfilled. Nothing was working out for her. By the time Chef and I got married, just over a year ago. She was ALWAYS using a walker or wheelchair. She had to have her sister come to the wedding with her as an assistant. Since then she has been in a nursing home twice. They had told her that she has a form of M.S. called primary progressive (basically the worst kind of M.S. there is). This form doesn't relapse like the others you just steadily become worse, there is no known medication to treat this form some meds many even make it worse. As of this last weekend she is back in the nursing home. There has been a doctor look at ALL of her MRIs, he has compared them all and states that there has been very little to no changes in her lesions(scares in the brain that are an indicator of M.S.). Now they are saying she likely does not have M.S. (again).
Chef has not yet told his family of his diagnosis. With this new development with his mother I am encouraging him to talk to her and let her know what he is experiencing. My wonder is if this isn't something different that is genetic (they don't know if M.S. is genetic or not). At this point I feel that the more information that they and their doctors have the better chance they both have of feeling better and understanding what is going on with their bodies. We see Chef's neurologist next month. Informing him of Chef's mom's new development is high on my priority list. I hope that something positive can come from this for both of them. Things have been negative for way to long, especially for his mom.
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Sounds like she's a tough woman. I hope you can all exchange information to support each other, AND with the doctors to see if there can be some solution. I'll be thinking good thoughts and sending positive energy to all of you! Stay strong, girlie!
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